Posts

Showing posts from April, 2012

Boy on TSW : he wants to awake from a coma and be done with this

Image
Not trying to scare you but trying to make some of us THINK HARDER!! His name is Z and he says "he wants to awake from a coma and be done with this" This is his story from his mother : Unfortunately, he has been on steroids since he was about 2 or 3 months of age. He will be 13 in May. I have always been searching for ways to handle his eczema better but have never come across anything about topical steroid addiction until last month. Reading Kelly's page and Dr. Rapaport's article was as if they had wrote itabout him. In fact, the night I found it, I could hardly sleep because for once, I finally had hope for him! Originally we did start out on low dose steroids... however they were steadily increased when they "weren't working anymore." For the past couple of years I have been telling the derms that we need to quit putting bandaids on the situation and figure out what is really going on... that it continues to get worse even though they are using

It's ok to call me reckless...

Image
It's ok to call me reckless... Good day! Well I've been busy trying to get this site up from my Malay blog that I totally forgot to put a disclaimer at the top just like the one in the Malay blog, so there you go - sorry to be so reckless I am still not a "huge" fan on topical steroids - neither are my friends and I do have a personal reason for doing so. But I think education and research is a very very important part when deciding personally what you should and should not do. I understand that each person's eczema is different and each person's management is different - there no 1 size fit all. For me myself, I went to see an Immunologist instead of a Derm and got a totally new management all together. I don't mind being called reckless. Not many people (except for those in the AAE group) know me personally and how I have worked towards my own management. I also have a few adult sufferers who aren't even having "a few patches" here

Bamboo Bubby now available in Malaysia & Singapore

Image
Bamboo Bubby Bags can not only relieve the severity of infant and toddler eczema flare ups, but its unique design provides ultimate comfort and value. Bamboo Bubby Bags NOW AVAILABLE IN MALAYSIA & SINGAPORE   Bamboo Bubby is excited to introduce our Malaysian stockist  Babies Wishes Inc . Babies Wishes have an online store using Facebook at: https://www.facebook.com/babieswishes They have just put Bamboo Bubby up on their site and are currently taking Pre-orders while the bags are being sent to them. You can also send an email to Anicia who runs the business at  babieswishes@gmail.com  for further information. Anicia also runs a great Facebook Group called  Babies Itch free Just skin deep away  which you can ask to join to ask or read advice from other parents about your child's eczema issues. Allow skin to heal The Bamboo Bubby Bag™ is the ideal product for  healing baby eczema  and breaking the itch-scratch cycle which is one of the most distress